...with my eyes.
Each time when I get Uveitis in my eyes, I spin the barrel on a metaphorical revolver and pull the trigger where I have a 1 in 3 chance of a permanent lifelong bad partially-sighted to blind outcome.
Last time it happened I lost 80% of the vision in my right eye and I have now got it as a result of a mild summer viral infection after 2 uveitis free years again in my good left eye.
The good: Each time I get this happening I understand the condition more and the symptoms, can visit the doctors quickly, they react quickly, and I will hopefully have a good outcome. This time I only have the infection in the front part of the uvea and I'm on an aggressive treatment plan of steroid drops every 4 hours (6 times a day) in my left eye for a week, before it will hopefully improve and they will start tapering the treatment. I then have to apply counter drops twice a day for the first few days to counteract the raised pressure caused by the steroids (same as glaucoma raised eye pressure), which have the further side effect of pupil dilation with blurred vision for about 4 hours twice a day.
The bad: Apart from the obvious risk to my eyesight is that the NHS have no relapse guidelines for recurring symptoms, you are on your own here and last time the symptoms were there and I didn't realise until my eye had a slight dark shadow as it was destroying my optic nerve, hence the 80% sight loss.
The problem is that the symptoms gradually come on and are not easily seen or diagnosed where in the early stages they are so subtle. This time: A slight white colour hue with computer black writing turning slightly grey, slight mottling when squinting at a white background, slight noise like a sightly poor analogue tv signal, slightly poorer focus where I've gone from borderline x2.50 to x3 reading glasses and the least subtle of all the symptoms that sometimes during the day bright sunlight or lights have an obvious white hue and white halo around a light source which got the alarm bells ringing this time as this was the most noticeable last time. I shall write to the consultant suggesting that they should provide patients with things to look out for follow up notes as this could potentially save other patients eyesight.
As the combination of problems I have are quite rare 2-5 per 100,000 per year there is very little understanding or research on it compared to other eye conditions and limited unapproved experimental or approved treatment.