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Chat Area => General Discussion Area => Topic started by: Terbs on 05 October 2010, 11:32:22

Title: Need advice badly
Post by: Terbs on 05 October 2010, 11:32:22
 :(
Hi Boys and Girls....

Sorry but this post is very depressive but I need help or advice badly....so it may run on a bit.
My mother is almost ninety and is doing my head in. She lives in a flat and has got paranoid about others living around her.
She now thinks that they are using her heating. I said she will have to go into a home if she feels this badly, but she contradicts herself all the time, one day, yes, next day 'I'm not moving'.
She won't have anything to do with the Doctor, under the guise that they don't want old people in the surgery. I cannot argue in any way or contradict her in any way without her taking umbrage.
I just don't know what to do....anybody been through this :(
Title: Re: Need advice badly
Post by: Mysteryman on 05 October 2010, 11:41:38
I can't give any advice of my own, I have no knowledge of such things. But I'm sure that if you give Age Concern a ring, they would be able to advise you. I don't think your situation is that uncommon.
Title: Re: Need advice badly
Post by: Jimbob on 05 October 2010, 11:46:47
Yes we went through similar a few years ago..

Total distrust of Doctors,
Fear of hidden agendas
Hearing things
Paranoia

Think a lot of it is a generational thing and happens as they get older.
Cant really advise much, as our case came to the usual sad natural end, as these things often do, (mid 90's)
Title: Re: Need advice badly
Post by: pscocoa on 05 October 2010, 11:54:44
This is also a Social Services issue as she may be classed as at risk and you should not hesitate to pick up the phone to them - this may be of use:

http://www.dementiaweb.org.uk/social-services-and-dementia.php

but contact your local authority asap and Age Concern as well
Title: Re: Need advice badly
Post by: Varche on 05 October 2010, 11:57:15
Hi

I can identify with your situation from personal experience. One uncle saw two black people at the bus stop in the all white village he lives in and then heard a noise in his attic and is now convinced that they(and their family) are all living in his attic. (it is a small bungalow) The police went round and couldn't find anyone up there but he remains convinced they are there. In all other respects he is quite normal. In a months time he will have forgotten about that and started off on something new.

I would suggest you get third party help. Try having a chat with social services. does your mother need help with daily tasks like getting dressed, washed or making meals? There is (for the time anyway) a good array of help available. Perhaps having a neutral person around would defuse tension.

I am no doctor but maybe some form of medication (happy pills) would probably be beneficial too. Of course the big hurdle is getting her seen buy a doctor followed by her then regularly taking the medication.

Hope that helps, don't despair. :y
Title: Re: Need advice badly
Post by: Terbs on 05 October 2010, 12:03:14
Thanks for that link....its very imformative. :y
Lord knows how I am going to get this across as she insists she is not 'going round the bend'. Even If I go behind her back, she will go 'off on one'
This is turning out exactly as she has told me my grandmother finished up. :( but she won't acknowledge it.
This may sound harsh, but my wife and me have agreed 100% that neither my mother nor her mother will come here to live, because of the practicalities, etc.
Title: Re: Need advice badly
Post by: Terbs on 05 October 2010, 12:12:33
Quote
Hi

I can identify with your situation from personal experience. One uncle saw two black people at the bus stop in the all white village he lives in and then heard a noise in his attic and is now convinced that they(and their family) are all living in his attic. (it is a small bungalow) The police went round and couldn't find anyone up there but he remains convinced they are there. In all other respects he is quite normal. In a months time he will have forgotten about that and started off on something new.

I would suggest you get third party help. Try having a chat with social services. does your mother need help with daily tasks like getting dressed, washed or making meals? There is (for the time anyway) a good array of help available. Perhaps having a neutral person around would defuse tension.
I am no doctor but maybe some form of medication (happy pills) would probably be beneficial too. Of course the big hurdle is getting her seen buy a doctor followed by her then regularly taking the medication.

Hope that helps, don't despair. :y

This is the thing, Varche....she is fully mobile, gets dressed, cooks food ok, goes on the bus down to town for a bit of shopping, has a car to take her to 'local' shops where there is a bus problem.
We have managed to get a cleaner in for an hour once a month, and by heck, did that take some doing. I am waiting for the call to say she has told the cleaner not to come.
I am gonna try tp help from somewhere and if she would only see the doctor that would possibly help. But last time we 'arranged' an 'informal' visit from the nurse....all hell broke loose, and she knew it was planned. :(
Sorry to tug you lot into it, but I have just had a half hour phone call from her, counter-productive on all I try to say or do and just needed to talk (albeit electronically) :y

Title: Re: Need advice badly
Post by: pscocoa on 05 October 2010, 12:29:29
if people using her heating is the main problem then rather than keep pushing back on this have a mate come round to "test" the heating and say that he has made sure that the heating is her place only - he will have to be a good actor and have some sort of ID I suppose as she sounds quite sharp.

When visiting my mother in hospital a few years ago the lady in the next bed had dementia and people just avoided her because she came out with strange things and kept repeating them.

I just do things my own way and also came out with stuff eg she said she was from Denton - so I became the Mayor of Denton, another time I was a trolley bus driver and my regular parting comment was to put her in charge of the bingo on the ward (which did not exist). You probably think I am strange but it tweaked certain parts of her memory and you just play the best you can to the situation. Does this make things worse? I don't think so because the alternative is either no-one speaks, ducks the problem or you engage her in chat which is non confrontational.
Title: Re: Need advice badly
Post by: aaronjb on 05 October 2010, 12:38:29
I have no smart advice, I'm afraid (though I dread the day I'm in your position, so you have my sympathies), but:

Quote
This may sound harsh, but my wife and me have agreed 100% that neither my mother nor her mother will come here to live, because of the practicalities, etc.

I think it's quite likely that for anyone who's been a carer or been closely involved with a carer, that doesn't sound harsh at all.. I was still living at home when my mum was primary carer to her father (who lived with us) who was suffering from advanced Parkinsons and a touch of senility I suspect.. it was heartbreaking for all involved and all of us - my parents especially so - have said we wouldn't do the same again.. It's incredibly hard on a family, and I suspect ultimately isn't necessarily the best option anyway. </ramble>

Anyway.. good luck.
Title: Re: Need advice badly
Post by: Chris_H on 05 October 2010, 13:19:44
I wholeheartedly sympathise with your position.  My father had Louis Body Parkinsonism and that threw up a whole load of challenges for 3 years until he passed away.  My mother is 91 this year and is close to what you describe.

We have found that playing games (going along with what she says insofar as we can) buys some peace and quiet.  There is a moral dilemma for us in that we don't really want to lie or deceive.

One example: The SS suggested we apply for Attendance Allowance for my mum saying even if she isn't eligible yet, she can apply again later.  Well she got it, but the letter that came with it said it was because she needed help with her bodily functions.  She went potty and was seriously offended.  For a person whose memory is flaky due to age, she remembered this letter very well indeed! So, after failing to explain away the given reason, we told her to send back the money saying it was given under false pretenses.  The offence quietend-down several decibels after that!

One observation I have made is that the blood-relation finds it harder to handle than the in-law relation so if you have another half...?
Title: Re: Need advice badly
Post by: Terbs on 05 October 2010, 13:30:42
Chris, smack on mate... :y
I do have 'the other half', and she does stacks for my mum. You also have to bear in mind, she has to look after my Mother-in-Law, who is ninety, had two heart attacks. MIL is six months older than my mother, moans about everyone and everything, but her mind is sound. The problem we have with her, is that she will take an overdose if time comes she cannot be independant. That has been made quite clear. :(

I do as you...I say nothing, just let my mum go on and on.
I am going round there now, so will probably be a demented wreck when I get back.
Sorry this is a car forum........but when needs must ;) ;)
Title: Re: Need advice badly
Post by: Chris_H on 05 October 2010, 15:28:54
PM me or we could get on Skype if you want to rant later!

Thank you for bothering with your Mum.  I know it should be taken for granted but it sometimes helps for someone to say it. :y
Title: Re: Need advice badly
Post by: Terbs on 05 October 2010, 15:33:18
Probably PM you later...Have been round to see her....its me now on the verge :o
I feel powerless...not going to post on here....not fair to others
Title: Re: Need advice badly
Post by: mrgreen on 05 October 2010, 15:45:20
yes when they are older reality becomes more ellusive my mother had her mother till she was 99 in the house and has finally had to put her in a home and she comes up with some whoppers (she met the queen e.t.c.)  me personally I think that at this age it's hard to do what's right for them but it's also hard to do wrong by them as you know in the depths of your heart what you do will be only the best for them, good luck, Rich
Title: Re: Need advice badly
Post by: jereboam on 05 October 2010, 16:04:40
What sort of accommodation is your mother in?  If she has her own house, it sounds like it's time she moved to some sort of sheltered accommodation.  If she is already in such a place, then it's best to let the managment there deal with her. 

Getting her to abandon her own home for a flat in a block full of other old people will be a horrendous struggle, but it has to be done, or you will have no respite over the coming years. 

I have to deal with a 93-year old maiden aunt in London, and I know how difficult these problems can be.  I live 90 miles away, and I have a number of cousins who actually live a lot nearer.  My aunt, however, has managed to fall out with all of them, and won't talk to them any more.  There's just me and my brother left speaking to her, and my brother lives in Edinburgh. :(

We are totally reliant on the manager of the block of flats she lives in, and we need to keep it that way, because otherwise poor Auntie will become completely isolated.
Title: Re: Need advice badly
Post by: redelitev6 on 05 October 2010, 18:04:33
Quote
:(
Hi Boys and Girls....

Sorry but this post is very depressive but I need help or advice badly....so it may run on a bit.
My mother is almost ninety and is doing my head in. She lives in a flat and has got paranoid about others living around her.
She now thinks that they are using her heating. I said she will have to go into a home if she feels this badly, but she contradicts herself all the time, one day, yes, next day 'I'm not moving'.
She won't have anything to do with the Doctor, under the guise that they don't want old people in the surgery. I cannot argue in any way or contradict her in any way without her taking umbrage.
I just don't know what to do....anybody been through this :(
:( She might have a point-we've had plenty of cases here in Newcastle of people in upper flats lifting floor boards and tapping off electricity from light fittings,and some poor old biddy wondering why her leccy bill has suddenly gone up ! . on a more serious note, get as many people as possible involved , try the council for advice.
Title: Re: Need advice badly
Post by: Terbs on 05 October 2010, 19:41:36
Jereboam.....She is in her own flat, other old people around, but paranoid about upstais as 'they are not English'.
Moving out suggestions results in a torrent of abuse at me. Doctor made suggestions and received the cold shoulder since. Refuses to see him, or let me talk to him about medication.

redelitev6.....Reinforced concrete ceilings. Heating is two convector heaters 13amp. Cannot tap in to supply.

Thanks for concern and replies all of you...gonna have to cut off now as feeling too emotional.
Sorry chaps
Title: Re: Need advice badly
Post by: Webby the Bear on 05 October 2010, 19:51:19
i agree with a previous comment mate... im no doc but a course of anti depressants (aka happy pills) prescribed by the doc. these pills also have other benefits including lowering blood pressure (if high) and removing panic attacks (if the paranoid thing gets 2 much) :)

hope that helps.
Title: Re: Need advice badly
Post by: PhilRich on 05 October 2010, 20:05:36
Quote
Probably PM you later...Have been round to see her....its me now on the verge :o
I feel powerless...not going to post on here....not fair to others
[/highlight]





Don't be so bloody daft man! ;) This is the General Discussion Area, exactly the place vent off your frustrations to your mates (that's what we all are whether we realise it or not :y) It's having 'someone' to talk to that keeps you on an even keel in these kinds of situation terbert mate, so feel free to spout off here or you can bend my ear in a PM too any time you feel the need! ;) :y
Title: Re: Need advice badly
Post by: Chris_H on 05 October 2010, 20:37:05
I'm not sure if I recounted on here about my dad (mentioned above and 85 years old at the time).

Wife and I had a couple of friends round and were on our first glass of red when the phone rang.  It was my mum saying 'Dad's shouting and we can't stop him'.  So I put the glass down and trotted round the corner.

Two of my parent's grand-daughters were staying over and this was about 10pm.  I asked my dad what was wrong and he said "I'm upstairs and I want to get down.  Will someone please show me the stairs!"  Problem:  He was in the downstairs lounge!

I took him in the kitchen and asked him where he was.
Him: "In the kitchen".
Me: "Is the kitchen upstairs or downstairs?"
Him: "Downstairs".
Me: {thinks} "Yippee!"
Him: "I'm upstairs and I want to get down.  Will someone please show me the stairs!" (I'm going to have to cut-and-paste this a bit!"

I take him to the stairs.
Me: "Those are the stairs"
Him: "Those ones go up.  I want the ones that go down"
Me: "They're the same"
Him: "No they're not!"

I take him upstairs.
Me: "Where are we?"
Him: "Upstairs".
Me: "Let's go down then"
[We do]
Me: "Where are we now"
Him: "Upstairs!  Will someone please show me the way down!"
Me: "Rats!"

By this time we have two paramedics in the kitchen using up the teabags and they're calling NHS Direct for a doctor (and not finding it easy ;D).  They were with us for 4 hours in all but NHS Direct changed shifts at midnight so a lot went back to square one at that point.  There was an impasse where a doctor would not come out until a social worker was on site and the latter wouldn't come without the doctor being there.  Doh!  And this was an NHS ambulance crew trying to make the system work!

So the whole house is in some kind of freeze-frame with my dad wandering from room to room slamming doors and trying to find the stairs, getting increasingly agitated.  I'm having to fire off a few jokes to keep the rest from taking it too seriously.

Anyway, at about 2am a Social Worker arrives at the door.  My dad flings the door open and greets said person as if a call at that time of the morning was normal.  The social worker gets the SP from me and the paramedics then returns to her car to have a case-conference with the doctor.

My (nurse) wife has joined the party by this time as our guests had absented themselves and she took my mum upstairs to pack a bag as we assumed my dad would be admitted to hospital.  My dad followed her up the stairs and repeated his mission statement: "I'm upstairs and I want to get down.  Will someone please show me the stairs!"  My wife had had enough of him and barked "They're right behind you there!"  whereupon after 4 hours of disillusionment he snapped out of it just in time for the doctor to ring at the door!  Drat!

He made a cup of hot chocolate and toast while he talked to the doctor and social worker and we all said "He was barking! Honest!".

So, by 4am he was in hospital having missed being sectioned by the skin of his teeth and they were able to diagnose his illness.

It didn't seem like a good use of my time then and it doesn't now.  Quite amusing though in hindsight. :)