Omega Owners Forum
Chat Area => General Discussion Area => Topic started by: Lazydocker on 04 April 2011, 20:02:09
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Right, as most of you know I have had some severe back problems since December. I have been referred to the hospital for a MRI scan and (probably) surgery as it seems that I have a centrally prolapsed disk.
Problem I have is that I was referred 2 weeks ago and haven't even been graded by the consultant yet. Probably looking at a waiting list of between 5 and 13 weeks for the consultation, then a further wait for the MRI scan, then yet more waiting for any surgery that is decided necessary :'(
I am now at the point where I am in constant pain, 24 hours/day and cannot sleep. There are also other symptoms related to the pressure on my spinal column which make life pretty miserable TBH, coupled with the fact I can't remember the last time I managed to sleep for longer than about 3 hours without having to get up and have a walk around the house, it's normally about 2 hours and when really bad I can be up every hour or so :o
The dilemma I have is that I could go private as we have a good Private Hospital nearby. I have found out that I should be eligible to get funding for the surgery (if required) from a charity I have spoken with but have to pay for the Consultation and scan myself. Spoke to them today and it will be about £235 for the initial consultation and £450 for the scan.
Now that's the best part of £700 I don't really have to spend at the moment but if I wait for the NHS I'll either end up on SSP or possibly even out of a job. If the former, it really wouldn't take long before I've lost more than the £700 I'd be paying out now :-/ :-/
Thought long and hard about this and think I know what would be best but keep coming back to the fact that I could be graded urgent by the NHS consultant (not actually the same chap but same department ::)) and get an urgent appointment :-/
What would you do?
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Poll added
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I'd be onto the GP, the Hospital, the Consultant .. stating that the present situation is untenable .. you can't sleep, you can't work .. and waiting weeks for an appointment is ridiculous.
:(
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It's a really difficult decision and, practically, only one that you can make. You know your own circumstances best. If it were me, I would take the decision which got me pain-free the quickest, the rest could be sorted later.
What pisses me off is the fact that you're even faced with this decision.
World class NHS? Eff off.
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I'd be onto the GP, the Hospital, the Consultant .. stating that the present situation is untenable .. you can't sleep, you can't work .. and waiting weeks for an appointment is ridiculous.
:(
I have been... I've got the consultant's secretary on speed dial but it took a week for my referral to even be put on the system :o Ridiculous when you consider it's all done electronically now >:( At the end of the day, I have lived with this for 4 months so the attitude is that another few months won't do much harm, even though it is now much, much worse than it was when we were in Hampshire :'(
At the end of the day, the NHS is overstressed. Even if I get seen on the NHS, if there is a long wait for surgery I may be able to get a grant for the Op :y
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if your sleeps are disturbed to that extent , you have to solve it as soon as possible.. because your body cant resist without sleep as your immune system will be effected also.. :-/
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It's a really difficult decision and, practically, only one that you can make. You know your own circumstances best. If it were me, I would take the decision which got me pain-free the quickest, the rest could be sorted later.
What pisses me off is the fact that you're even faced with this decision.
World class NHS? Eff off.
Have you just woken up Steve? That's another sensible answer from you ;D ;D
In all seriousness... I'm pretty much decided on my course of action, just interested in other people's thoughts :y :y
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I am so sorry you are feeling so bad with your back problem that has been going on so long :'( :'( :'(
What I would do LD is to get an urgent appointment with your GP and request he asks for funding for whatever treatment you need. Explain how it is ruining the quality of your life and making you desperate, not just physically but emotionally! Heavily emphasis the latter and how you feel like doing something silly, but really just want help! :o :o
Before you take any other decision see what that produces ;) ;) I sincerely hope your doctor can do something constructive; some, like mine, certainly can :y :y
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Like it or not our health service is very good compared with elsewhere.
Paul I had some problems myself, I went the private route. I saw the consultant top guy of his field within days. He then decides if you are a priority and can help to get you seen on the NHS sooner rather than later where you will see him. Thats what happened with me anyway.
People may not like it but you need to think about thats best for you, in my book £700 would be worth every penny. 8-) :y
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if your sleeps are disturbed to that extent , you have to solve it as soon as possible.. because your body cant resist without sleep as your immune system will be effected also.. :-/
TBH, I've never been a very good sleeper... Probably because I have worked "odd" hours for the last 15 years or more. That said, it is starting to effect my mental state. :-/
Interestingly, I found out back in December that the saying that someone has a high pain threshold is genuinely true... If you live with pain for 12 (or possibly 16) weeks, the body resets the normal levels. That is the other reason I know this is getting much worse, because I do have quite a high pain threshold anyway.
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Short of collapsing in obvious pain in an A&E unit, pay the money to get the ball rolling.
Sleep depravation as a result of physical pain is debilitating and the longer you try to live with it the longer it will take you to recover.
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I think you should bite the bullet and pay to go private. You shouldnt have to but you have to do the best you can in the circumstances.If it gets you on the road to recovery it will be the best £700 you ever spend. ;)
Your young and active, and I would imagine the problem is destroying your quality of life. You cant put a price on your health imo. And being as breaked up as I am, I should know. ;D
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Like it or not our health service is very good compared with elsewhere.
Paul I had some problems myself, I went the private route. I saw the consultant top guy of his field within days. He then decides if you are a priority and can help to get you seen on the NHS sooner rather than later where you will see him. Thats what happened with me anyway.
People may not like it but you need to think about thats best for you, in my book £700 would be worth every penny. 8-) :y
I'd like to re-phrase that Dazzle... Our Health Service is excellent. One of the best (if not the best) free health service in the world! :y :y
I'm not complaining about the NHS here, there is a waiting list and it's only going to get worse with the new Incapacity Benefit Rules that have been introduced.
The surgery side is not a concern... As I have already stated, if I need surgery and there is a waiting list, I have already made enquiries and should be entitled to a grant for any surgery required. That is a maximum of a 21 day process. It's the initial consultation and MRI scan I'm discussing :y
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Hmmm, time for a few of my memorable quotes over the past few years of OOF...
1) I think the NHS should be shut down, it cannot be fixed
2) A bit of pain never hurt anyone
3) Its only pain, it'll go away
4) All doctors are gay
;D
But in your case, only you can decide. As suggested above, can you end up in A&E, crippled with pain, even after pain killers?
a) Might speed up the process
b) Something to do if you're bored sat at home
or
c) Drinnk heavily - the pain will subside ;D
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Hmmm, time for a few of my memorable quotes over the past few years of OOF...
1) I think the NHS should be shut down, it cannot be fixed
2) A bit of pain never hurt anyone
3) Its only pain, it'll go away
4) All doctors are gay
;D
But in your case, only you can decide. As suggested above, can you end up in A&E, crippled with pain, even after pain killers?
a) Might speed up the process
b) Something to do if you're bored sat at home
or
c) Drinnk heavily - the pain will subside ;D
Funny you should say that... It does very little to help with the pain but I did have a "few" Friday night and yesterday... I managed nearly 4 hours before I woke up the first time ;D ;D
Going into A&E really isn't an option as far as I'm concerned... I'm not dying and have lived with it for so long now anyway. I'd rather leave the A&E staff to deal with real Emergencies as they have always done so well when SWMBO needs their help :y
As to your other 4 quotes...
1 - I agree to some extent.
2 - Errm.... Isn't that a contradiction? :D
3 - It hasn't really gone away in the last 4 months!
4 - Of course you'd know that because you have downloaded that Grinder(?) GayPhone App :-X ::) ;D
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imo do a bit research for who is the best and which hospital and do it.. :y
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I am so sorry you are feeling so bad with your back problem that has been going on so long :'( :'( :'(
What I would do LD is to get an urgent appointment with your GP and request he asks for funding for whatever treatment you need. Explain how it is ruining the quality of your life and making you desperate, not just physically but emotionally! Heavily emphasis the latter and how you feel like doing something silly, but really just want help! :o :o
Before you take any other decision see what that produces ;) ;) I sincerely hope your doctor can do something constructive; some, like mine, certainly can :y :y
Afraid appointments with my GP are hard to get (actually I think he's on another 3 week holiday) and, TBH, not fruitful... When I saw him after 8 weeks and said I was still in pain he just tried pushing me to see the private Physio in the health centre. I even told him that both the Chiropractor and company doctor advised against seeing a Physio as I was already getting exorcises and everything else they would do from the Chiropractor. Oh... And I get free Physio through work anyway, and even they said there wasn't really a lot of point in me seeing them ;)
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imo do a bit research for who is the best and which hospital and do it.. :y
The surgeon I will see privately is one of the best in the country and also works at Ipswich NHS hospital ;) I'll probably see the same bloke for surgery either way ::) ::)
Additionally, the referral to the Private Hospital can include a little "String Pulling" as the consultant has already discussed my case with the Chiropractor because they are pals :y :y
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imo do a bit research for who is the best and which hospital and do it.. :y
The surgeon I will see privately is one of the best in the country and also works at Ipswich NHS hospital ;) I'll probably see the same bloke for surgery either way ::) ::)
Additionally, the referral to the Private Hospital can include a little "String Pulling" as the consultant has already discussed my case with the Chiropractor because they are pals :y :y
good news.. you did your homework :) :y
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Let's call a spade a spade Paul. You are paying to jump the queue. I'm not chiding you for it, but that's how it works now. If you couldn't lay your hands on £700.....and the person who's been wating a shorter time could......
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Hmmm, time for a few of my memorable quotes over the past few years of OOF...
1) I think the NHS should be shut down, it cannot be fixed
2) A bit of pain never hurt anyone
3) Its only pain, it'll go away
4) All doctors are gay
;D
But in your case, only you can decide. As suggested above, can you end up in A&E, crippled with pain, even after pain killers?
a) Might speed up the process
b) Something to do if you're bored sat at home
or
c) Drinnk heavily - the pain will subside ;D
Funny you should say that... It does very little to help with the pain but I did have a "few" Friday night and yesterday... I managed nearly 4 hours before I woke up the first time ;D ;D
Going into A&E really isn't an option as far as I'm concerned... I'm not dying and have lived with it for so long now anyway. I'd rather leave the A&E staff to deal with real Emergencies as they have always done so well when SWMBO needs their help :y
As to your other 4 quotes...
1 - I agree to some extent.
2 - Errm.... Isn't that a contradiction? :D
3 - It hasn't really gone away in the last 4 months!
4 - Of course you'd know that because you have downloaded that Grinder(?) GayPhone App :-X ::) ;D
Its the only way I can tell if that Gixer bloke is near me, so I can pretend to be out...
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Let's call a spade a spade Paul. You are paying to jump the queue. I'm not chiding you for it, but that's how it works now. If you couldn't lay your hands on £700.....and the person who's been wating a shorter time could......
Absolutely right... If I pay £700 I'll skip the wait right up to the decision on surgery... If that's needed I still have to wait unless I pay again ;)
That's the way of the world now though... At least I won't get marched through the NHS waiting area to get seen first though, as happens in some departments :o :o
I'm paying for the privilege of seeing the consultant at a nice private hospital where there aren't really any waiting rooms ;) ;)
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It is cheaper to pay in the long run - back to work quicker not losing job ect ect
DO IT TOMORROW
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It is cheaper to pay in the long run - back to work quicker not losing job ect ect
DO IT TOMORROW
It'll be next week if I decide to do it ;) I have a few commitments this week and the turnaround at the private hospital is quick. Father in Law called them on a Monday morning to see them about a concerning mole on his face... It was removed on the Thursday :y
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Much as it's galling to pay for something that should be free - what price do you put on your quality of life over the last (and next) 6 months?
Plus, the likelihood that you'll keep your job, etc..
Many people pay out a lot more than this annually when they are well for private health insurance. Take the view that you've been self-insuring and pay.. IMHO.
Kevin
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Right, as most of you know I have had some severe back problems since December. I have been referred to the hospital for a MRI scan and (probably) surgery as it seems that I have a centrally prolapsed disk.
Problem I have is that I was referred 2 weeks ago and haven't even been graded by the consultant yet. Probably looking at a waiting list of between 5 and 13 weeks for the consultation, then a further wait for the MRI scan, then yet more waiting for any surgery that is decided necessary :'(
I am now at the point where I am in constant pain, 24 hours/day and cannot sleep. There are also other symptoms related to the pressure on my spinal column which make life pretty miserable TBH, coupled with the fact I can't remember the last time I managed to sleep for longer than about 3 hours without having to get up and have a walk around the house, it's normally about 2 hours and when really bad I can be up every hour or so :o
The dilemma I have is that I could go private as we have a good Private Hospital nearby. I have found out that I should be eligible to get funding for the surgery (if required) from a charity I have spoken with but have to pay for the Consultation and scan myself. Spoke to them today and it will be about £235 for the initial consultation and £450 for the scan.
Now that's the best part of £700 I don't really have to spend at the moment but if I wait for the NHS I'll either end up on SSP or possibly even out of a job. If the former, it really wouldn't take long before I've lost more than the £700 I'd be paying out now :-/ :-/
Thought long and hard about this and think I know what would be best but keep coming back to the fact that I could be graded urgent by the NHS consultant (not actually the same chap but same department ::)) and get an urgent appointment :-/
What would you do?
Paul i'm really sorry you're having such a hard time of it mate, i've been there, done that bought the t shirt etc for the past 24 years! I finally had my lower spine fused in 1993 but it wasn't a success and has left me with a weak left leg & in chronic pain. Modern surgical techniques are far more advanced now but my view is surgery is an absolute last resort!!
As for the pain, if you ask to be refered to the Physio dept at your local hospital, they should teach you the various techniques for avoiding/reducing pain during everyday tasks & at night. A google on 'back pain' etc will bring up loads of info, though not much of any real use. My one tip for attempting a decent nights rest is to lie flat on your back with a small towel rolled in a 'sausage' & slid under the small of the back to stop the spine sagging & also a pillow under your knees to bend the legs slightly as this takes the strain off your lower spine. Codeine & Paracetamol or Tramadol to dull the pain together with Voltarol as a muscle relaxant will help. If the pain/muscle spasm becomes absolutely unbearable, your GP or Emergency Callout Doctor can give an injection of liquid Voltarol which gives immediate relief
Try applying heat (or indeed cold, as in icepack :o) depending on what you respond to best. If heat applied to the area gives relief then make full use of the heated seats in the car, I couldn't do without mine!
As for the Poll, I think you've already made up your mind, so I wish you all the best with that. In the meantime you might like to try some of these 'snakeoil' remedies until you can get to see the hospital Physio? :D ;D Look after yourself! Regards, Phil. :-*
http://www.painclinic.org/treatment-exercises-beforeyoustart.htm
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Much as it's galling to pay for something that should be free - what price do you put on your quality of life over the last (and next) 6 months?
Plus, the likelihood that you'll keep your job, etc..
Many people pay out a lot more than this annually when they are well for private health insurance. Take the view that you've been self-insuring and pay.. IMHO.
Kevin
Unfortunately that one is still up in the air... I may never be able to return to my current role. But should be able to re-deploy within the company :y
I do have another couple of irons in the fire, so to speak, just in case though ;) ;)
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Paul i'm really sorry you're having such a hard time of it mate, i've been there, done that bought the t shirt etc for the past 24 years! I finally had my lower spine fused in 1993 but it wasn't a success and has left me with a weak left leg & in chronic pain. Modern surgical techniques are far more advanced now but my view is surgery is an absolute last resort!!
As for the pain, if you ask to be refered to the Physio dept at your local hospital, they should teach you the various techniques for avoiding/reducing pain during everyday tasks & at night. A google on 'back pain' etc will bring up loads of info, though not much of any real use. My one tip for attempting a decent nights rest is to lie flat on your back with a small towel rolled in a 'sausage' & slid under the small of the back to stop the spine sagging & also a pillow under your knees to bend the legs slightly as this takes the strain off your lower spine. Codeine & Paracetamol or Tramadol to dull the pain together with Voltarol as a muscle relaxant will help. If the pain/muscle spasm becomes absolutely unbearable, your GP or Emergency Callout Doctor can give an injection of liquid Voltarol which gives immediate relief
Try applying heat (or indeed cold, as in icepack :o) depending on what you respond to best. If heat applied to the area gives relief then make full use of the heated seats in the car, I couldn't do without mine!
As for the Poll, I think you've already made up your mind, so I wish you all the best with that. In the meantime you might like to try some of these 'snakeoil' remedies until you can get to see the hospital Physio? :D ;D Look after yourself! Regards, Phil. :-*
http://www.painclinic.org/treatment-exercises-beforeyoustart.htm
Thanks Phil for your response. I have done all you have suggested, although my exercises came from the Chiropractor instead of the NHS Physio (minimum 6 months wait :o), although the Company Physio I spoke to said I was already doing the right exercises :y
The heated seats were the most comfortable place to be but the deterioration is such that even that is now uncomfortable.
I'm currently only on Paracetamol and Codeine for pain relief and a strong, Diclofenac based anti-inflamatory. I'm reluctant to go onto anything stronger for pain relief but may not have any choice. TBH, the spasms aren't too bad now, it's just the constant dull pain (think tooth ache) and, worse still, the fact I constantly feel like I need to pee... Fortunately it's not at the point where I've lost bladder control yet but am well aware that this is the next step :'( :'( Trouble is, when you feel like you need to go, you don't know if it's a false alarm until you try ::) ::)
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Sorry to hear this is not being sorted quickly Paul, my personal experience with the NHS is fantastic, but this was for a different condition, and even years later I suffer a combination of aches and pains following serious surgery, but have a life... :y
I think, in your position, I would be tempted to fork out the money and go private, though I hate to say so :-X a couple of months back at work will recoup the costs and hopefully you will be back to a better quality, if never quite the same, lifestyle....Just my tuppence worth... :y :y
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£700 is a small price to pay for a quick resolution to this, if you're able to pay IMO. Pain to this extent is a miserable existence. Really sorry to hear you're having such a crap time :(
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As I've already said, I've pretty much made my mind up what I'll be doing. I'm just interested in other people's thoughts :y :y
Vamps... I am not criticising the NHS at all in this. There is a waiting list and I don't expect special treatment from the NHS ;) Generally Ipswich hospital have been superb from our past experiences. SWMBO has severe Allergies and any visit regarding them is dealt with in a highly efficient manner. Similarly the pregnancy problems we have experienced :y :y
My question is purely for an inquisitive mind ::) ::)
Oh... And I'm the one who voted for the Lottery because I want to be able to see the results ;D ;D
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Pay, asap. Is there anything to say it won't get worse at any given moment? Heaven forbid. Don't mess with it.
However...
They, the nhs and govt., set the criteria and how much we pay in national insurance, some may want to pay more for a better service, some less. No matter we can only pay what's demanded. Yet when the time comes, the service is lacking.(in some areas it excells though)
It's not free, you/we have paid. Up front! Certainly longer standing nat ins contributors have.
The fact your having to pay extra to receive satisfactory treatment is not on.....IMO!
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Pay, asap. Is there anything to say it won't get worse at any given moment? Heaven forbid. Don't mess with it.
It's not good, put it that way. I have a few commitments this week, including the weekend (which will get me out and about for a couple of days ;)) but will probably be booking an appointment for the following week... This should see my file assessed by the NHS Consultant and an idea of how long I'll be waiting. He might surprise me and assess it as urgent, giving me an appointment within a week or so (but I doubt it ::))
However...
They, the nhs and govt., set the criteria and how much we pay in national insurance, some may want to pay more for a better service, some less. No matter we can only pay what's demanded. Yet when the time comes, the service is lacking.(in some areas it excells though)
It's not free, you/we have paid. Up front! Certainly longer standing nat ins contributors have.
The fact your having to pay extra to receive satisfactory treatment is not on.....IMO!
Agreed... We have paid for it. But, TBH, there are too many people in the country who don't pay the NI stamp. This leaves an enormous hole in the budget. Would I be happy to pay more NI? Yes, as long as it went to improving the NHS ;)
TBH, the cost (although not exactly money I have want to spend ::)) is immaterial... If it were £2k and I thought it was the correct choice I would still pay it ;)
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Hope you can get sorted soon mate! Sadly, for what its worth, I think you made the right decision. Youve been suffering long enough and the nhs situation re the waiting list is what it is to a degree. You also were able to find the £700. Too often we consider spending money we really havent got on material things (cars/pc etc) but when it comes to our health , even minor things like that new pair of glasses we need or that dental work we could do with, we baulk at it. Daft really. Which is more important really? The issue really would be what if you really couldnt find the money? Wont bore you all with the details and dont mean to hi-jack your thread but our youngest has aspergers and over the past year or so has developed a club foot. His physio was really concerned at eliminating certain things before she could work on him. She is VERY good but some others in the nhs system are dire. Reading up , one of the possible causes would be a tumour on the spine. The best way to check was an MRI. There is no way we could find the money to do this privately . As youve no doubt found out the nhs machine can be a lumbering , infuriatingly slow machine where the left hand doesnt even know its got a right one. 2 specialists told us it was "urgent" yet the waiting list was months. I could accept this to a degree but -based on what I learned a long time ago in work-there is always someone who can speed up a process -its just finding them! Anyhow, many many phone calls /emails later to ALL the people we could think of and constant pressure paid off and we got an earlier appointment. "He who shouts loudest"? Dont know. I wouldnt want to deprive anyone of need of their place in the list, but when its your own child guess things take a different perspective. We now await further tests as to whether the cause is cerebal palsy (non progressive) or dystonia (progressive) so more worrying times ahead. Anyhow, didnt mean to hijack this thread but , given the circumstances, think you made the right decision and really hope the treatment works for you and that you feel better soon especially after so very many months of pain and discomfort :y
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Jerry, I can sympathise to some extent with what you're going through... My kid brother has Ashbergers, although very little physical effects thankfully!
As for finding the money... I haven't got it sorted yet but have some very good friends/family who will help out :y I just wish this hadn't taken so long as I've spent that much (and more!) on other private treatments under recommendation from my GP >:(
Still... Hopefully things will start moving in the right direction very soon :y
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Jerry, I can sympathise to some extent with what you're going through... My kid brother has Ashbergers, although very little physical effects thankfully!
As for finding the money... I haven't got it sorted yet but have some very good friends/family who will help out :y I just wish this hadn't taken so long as I've spent that much (and more!) on other private treatments under recommendation from my GP >:(
Still... Hopefully things will start moving in the right direction very soon :y
Just for the record, Aspergers does not have any physical problems, that would be separate issue/diagnosis..... :y
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very true vamps-the two are seperate issues, though such so called " learning difficulties" as aspergers, ADHD etc are associated with cerebal palsy in as much that their presence in some cp cases may indicate a link. To my knowledge there is no such link put forward around genetic DYT1 dystonia.
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very true vamps-the two are seperate issues, though such so called " learning difficulties" as aspergers, ADHD etc are associated with cerebal palsy in as much that their presence in some cp cases may indicate a link. To my knowledge there is no such link put forward around genetic DYT1 dystonia.
[/highlight]
Stop, we need to talk, but not now as I need to go to bed... ::) aspergers is a learning disability, not a difficulty.ADHD is a seperate diagnosis and absolutely no link to Cerebral Palsey. When you say cp do you mean Cerebral Palsy or Child Protection?
PM me with your phone number or ring me on 01642 878141 for a chat, in working hours, tis a secure number..... :y
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Yep, should have made it clearer. He has the learning disease but none of the physical symptoms it can be associated with :y
Jerry, I suggest a chat with Vamps... He knows his stuff ;) There is some help available, although you will probably have to fight hard for it ::)
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£700 is not a huge sum of cash in reality.
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I would kick up a stink with the GP and hospital, put it in writing that the pain you are in is such that you have no option, advise that you hold them responsible for you having to pay to go privately, copy the letter to your MP, give them a couple of days to respond, advise that you will seek reimbursement. Maybe it has gone on too long to wait but keep notes of your dialogue with the NHS etc.
Sorry I did not get on to this earlier.
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very true vamps-the two are seperate issues, though such so called " learning difficulties" as aspergers, ADHD etc are associated with cerebal palsy in as much that their presence in some cp cases may indicate a link. To my knowledge there is no such link put forward around genetic DYT1 dystonia.
[/highlight]
Stop, we need to talk, but not now as I need to go to bed... ::) aspergers is a learning disability, not a difficulty.ADHD is a seperate diagnosis and absolutely no link to Cerebral Palsey. When you say cp do you mean Cerebral Palsy or Child Protection?
PM me with your phone number or ring me on 01642 878141 for a chat, in working hours, tis a secure number..... :y
Not in my experience. My lad is very good at humanities, excellent in english and outstanding at maths and IT.
He has communication and understanding difficulties.
Please remember that 'aspergers' is covered by a vast umbrella and is sometimes diagnosed in the abscence of 'anything else'.
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very true vamps-the two are seperate issues, though such so called " learning difficulties" as aspergers, ADHD etc are associated with cerebal palsy in as much that their presence in some cp cases may indicate a link. To my knowledge there is no such link put forward around genetic DYT1 dystonia.
[/highlight]
Stop, we need to talk, but not now as I need to go to bed... ::) aspergers is a learning disability, not a difficulty.ADHD is a seperate diagnosis and absolutely no link to Cerebral Palsey. When you say cp do you mean Cerebral Palsy or Child Protection?
PM me with your phone number or ring me on 01642 878141 for a chat, in working hours, tis a secure number..... :y
Not in my experience. My lad is very good at humanities, excellent in english and outstanding at maths and IT.
He has communication and understanding difficulties.
Please remember that 'aspergers' is covered by a vast umbrella and is sometimes diagnosed in the abscence of 'anything else'.
Which is commonly the case... If it's something he/they enjoy then they can learn it easily. If it's something really easy they may refuse to try and learn it.
As you say, it is a huge umbrella
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I would kick up a stink with the GP and hospital, put it in writing that the pain you are in is such that you have no option, advise that you hold them responsible for you having to pay to go privately, copy the letter to your MP, give them a couple of days to respond, advise that you will seek reimbursement. Maybe it has gone on too long to wait but keep notes of your dialogue with the NHS etc.
Sorry I did not get on to this earlier.
Let's be fair to the NHS hospital here, I was only referred to them 2 weeks ago ;) All other avenues of treatment had to be exhausted first ::)
The choice to go Private is looking at the bigger picture. As Kevin (I think) said, there are people who pay the same amount (or more) Annually for Health Insurance and never use it... I could easily view it that I've been self-insuring :y Equally, as I stated at the start, if I let this drag on I will almost certainly end up on SSP instead of full pay before the end of the process... A few weeks with that loss in pay will cover my outlay now ;) ;)
I have no intentions of stirring things up for the NHS Hospital... There is a waiting list and I'm on it :y As I said before, they are generally very good. My Sister in Law is in hospital today for a minor operation... She was only referred about the problem 8 weeks or so ago. Was due to go in next month and had a call yesterday afternoon because there was a cancellation :y :y Different department and different issue, but a sign of the fact that the NHS isn't completely broken :y :y
Like I have said, I have already decided what course of action I intend to take but was interested in other people's thoughts... Keep them coming :y :y
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£700 is not a huge sum of cash in reality.
Agreed... Not a huge amount at all :y Although it is if you haven't got it ::)
But this £700 isn't to resolve the problem... Essentially it's just for a diagnosis ;) And, as STMO rightly says, to jump the queue for that diagnosis ::)
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very true vamps-the two are seperate issues, though such so called " learning difficulties" as aspergers, ADHD etc are associated with cerebal palsy in as much that their presence in some cp cases may indicate a link. To my knowledge there is no such link put forward around genetic DYT1 dystonia.
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Stop, we need to talk, but not now as I need to go to bed... ::) aspergers is a learning disability, not a difficulty.ADHD is a seperate diagnosis and absolutely no link to Cerebral Palsey. When you say cp do you mean Cerebral Palsy or Child Protection?
PM me with your phone number or ring me on 01642 878141 for a chat, in working hours, tis a secure number..... :y
Cheers Vamps,
Weve had-are continuing to have to a degree!- a struggle to get him diagnosed with aspergers and over the past year or so Ive done a fair amount of research into it as well as having attended one of the "Early Bird " courses run by the National Autistic Society which was very good. To me, aspergers isnt about learning issues as much as social ones and obviously the scale of AS or Autism as a spectrum is vast. Our current concerns over his leg/foot are a seperate issue, being "physical" rather han "mental" though its cause is neurological. Will PM you later :y
PS , Lazy docker, thanks for your support too and help all goes well-and quickly!-for you ! :y
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very true vamps-the two are seperate issues, though such so called " learning difficulties" as aspergers, ADHD etc are associated with cerebal palsy in as much that their presence in some cp cases may indicate a link. To my knowledge there is no such link put forward around genetic DYT1 dystonia.
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Stop, we need to talk, but not now as I need to go to bed... ::) aspergers is a learning disability, not a difficulty.ADHD is a seperate diagnosis and absolutely no link to Cerebral Palsey. When you say cp do you mean Cerebral Palsy or Child Protection?
PM me with your phone number or ring me on 01642 878141 for a chat, in working hours, tis a secure number..... :y
Cheers Vamps,
Weve had-are continuing to have to a degree!- a struggle to get him diagnosed with aspergers and over the past year or so Ive done a fair amount of research into it as well as having attended one of the "Early Bird " courses run by the National Autistic Society which was very good. To me, aspergers isnt about learning issues as much as social ones and obviously the scale of AS or Autism as a spectrum is vast. Our current concerns over his leg/foot are a seperate issue, being "physical" rather han "mental" though its cause is neurological. Will PM you later :y
PS , Lazy docker, thanks for your support too and help all goes well-and quickly!-for you ! :y
ISTR my mum had the same issues... Took about 16 months IIRC >:(
But, once done, she has had some pretty helpful support, both financially and with his educational needs :y
Oh... And thanks for the kind wishes :y :y
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very true vamps-the two are seperate issues, though such so called " learning difficulties" as aspergers, ADHD etc are associated with cerebal palsy in as much that their presence in some cp cases may indicate a link. To my knowledge there is no such link put forward around genetic DYT1 dystonia.
[/highlight]
Stop, we need to talk, but not now as I need to go to bed... ::) aspergers is a learning disability, not a difficulty.ADHD is a seperate diagnosis and absolutely no link to Cerebral Palsey. When you say cp do you mean Cerebral Palsy or Child Protection?
PM me with your phone number or ring me on 01642 878141 for a chat, in working hours, tis a secure number..... :y
Cheers Vamps,
Weve had-are continuing to have to a degree!- a struggle to get him diagnosed with aspergers and over the past year or so Ive done a fair amount of research into it as well as having attended one of the "Early Bird " courses run by the National Autistic Society which was very good. To me, aspergers isnt about learning issues as much as social ones and obviously the scale of AS or Autism as a spectrum is vast. Our current concerns over his leg/foot are a seperate issue, being "physical" rather han "mental" though its cause is neurological. Will PM you later :y
PS , Lazy docker, thanks for your support too and help all goes well-and quickly!-for you ! :y
Has he been tested for fragile X at all? that has some major similarities to Aspergers, with some physical bits as well, and im sure foot problems was one of them from memory.
We are another family, with an autism diagnosis, and the help that has given, both in a label, and school / financial support has been immense.
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at the end of the day paul, if the pain is doing your head in and grinding you down.
pay the money and try and move it along faster :y
700 quid is nothing if its getting to you :y
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are there any options for taking private healthcare from work? Do they offer any schemes?
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are there any options for taking private healthcare from work? Do they offer any schemes?
Yep... But too late now as it won't cover existing conditions.
I'll satisfy myself that I've saved about £8/week for the last 6 years by not buying into it :y :y
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I have Voted for choice number 5, I think its the best thing for you Lazytinker :y
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going by my own problem it seems to me there are too many unnecerssary consultants employed at hospitals hindering treatment for those who need it badly. i see one last may, he didnt even examine me but looked at an x ray of 2005 and told me i needed botox unjections in the spine. was referred to another consultant i see 2 weeks ago who sorted it all out within 5 mins. si why did i see this useless waste of space last yr causing me to lose about 30k in lost wages.
if i was you ld i would go to the complaints office at the hospital and state your case..it may help. i really hope you get it sorted quick as i can relate to what your feeling both mentally and physically. fingers crossed matey and hope you get sorted fast
rich
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and a massage really does help or a steaming hot towel on your back, but dont! ask for extras ;D
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Can't believe he put that on his list. . Wait till I let it slip in front of his Sweet Young Thing. :-? ;D
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Thanks Daz. ;D ;D ;D
Richie, like I said, I have no intentions of causing trouble at the hospital... There's a waiting list and I've been on it for 2 weeks ;)
I've already made the decision to get the consultation and scan done privately. I'd made the decision before I even started this thread but was interested in other people's opinions :y :y
As a bit of a result, I had a call from the VP of the Old Boy's Association of the school I went to today saying that he had heard of my situation and the Association would meet the cost of the consultation (but not the scan) to try and speed things along for me. I was very active within the Association and have given a lot of my time (and money) over the last 5/6 years and they thought it was an appropriate sign of appreciation... That's a result :y :y
I've also found out today that I am eligible to apply for a grant from another charity to meet the cost of surgery if certain criteria are met so things are looking up :y :y
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and a massage really does help or a steaming hot towel on your back, but dont! ask for extras ;D
Funnily enough, I have a friend who keeps telling me to get a small Thai Lady to walk up and down my back! ;D ;D
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and a massage really does help or a steaming hot towel on your back, but dont! ask for extras ;D
Funnily enough, I have a friend who keeps telling me to get a small Thai Lady to walk up and down my back! ;D ;D
Sounds like a job for the Countess. ::)
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and a massage really does help or a steaming hot towel on your back, but dont! ask for extras ;D
Funnily enough, I have a friend who keeps telling me to get a small Thai Lady to walk up and down my back! ;D ;D
Mind she doesn't fall in when she gets to the bottom.
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I had a bad back many years ago and had to sleep on the front room door for 3 weeks.
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I had a bad back many years ago and had to sleep on the front room door for 3 weeks.
Hope you took it down first.
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and a massage really does help or a steaming hot towel on your back, but dont! ask for extras ;D
Funnily enough, I have a friend who keeps telling me to get a small Thai Lady to walk up and down my back! ;D ;D
my mate came back from amsterdam monday, he got a big surprise when the big breasted young lady stripped, she was big down below as well. so be careful. he didnt stay long enough for a refund ;D
he wont live that down for a while ;D
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I had a bad back many years ago and had to sleep on the front room door for 3 weeks.
Hope you took it down first.
Yes, they were rising butt hinges due to my wifes thick rug so it just lifted off
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I had a bad back many years ago and had to sleep on the front room door for 3 weeks.
Hope you took it down first.
Yes, they were rising butt hinges due to my wifes thick rug so it just lifted off
Did you sleep with your butt on the butt hinges?
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very true vamps-the two are seperate issues, though such so called " learning difficulties" as aspergers, ADHD etc are associated with cerebal palsy in as much that their presence in some cp cases may indicate a link. To my knowledge there is no such link put forward around genetic DYT1 dystonia.
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Stop, we need to talk, but not now as I need to go to bed... ::) aspergers is a learning disability, not a difficulty.ADHD is a seperate diagnosis and absolutely no link to Cerebral Palsey. When you say cp do you mean Cerebral Palsy or Child Protection?
PM me with your phone number or ring me on 01642 878141 for a chat, in working hours, tis a secure number..... :y
Not in my experience. My lad is very good at humanities, excellent in english and outstanding at maths and IT.
He has communication and understanding difficulties.
Please remember that 'aspergers' is covered by a vast umbrella and is sometimes diagnosed in the abscence of 'anything else'.
Absolutely, Asbergers is the high end of the ASD spectrum, which you are aware of :y my work is primarily at the low end of the spectrum. Communication and understanding difficulties would generally meet the criteria for statutory support services where I work, but as you say, a huge umbrella and every one is different, it's a minefield....we should have a chat sometime, in non forum mode.. :y :y
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The plot thickens a little... Got a letter from the NHS hospital yesterday with an appointment........... 30th June! That's 12 weeks away :o
I will say that they seem to have been quite sensible about it though and have requested the MRI scan before the appointment. Still means I'm looking at somewhere in the region of 20 weeks before surgery though :'(