That is fantastic news. I know what you and your family are going through. My youngest son has CF.We are lucky with him though as he has it mainly cofined to his stomach although he is now getting more chest infections each year. he is now 24. When it was first diagonsed, with him being nearly 3 years old, we were told in a very straight way that " He is now on the heart lung transplant register and he will have that by the time he is 13. He will only have a life expectancy of 16 yeras and will now need daily physio and numerous medicenes to keep him alive to that age. Any questions?" He has naturaly developed type 1 diabetes, so is a bit of an anomaly at The London Chest hostpital where he has his regular check ups. Apparently, all CF,s develop type 2 diabetes due to the diet they have to have but not type 1. i wish your sister all the best to a speedy recovery from the surgery and a better standard of life.
Keith B
sounds familiar Kieth. Good news that its mild in his case. Treatment moves on so quickly these days it's probably changed again since Amy left hospital. The War and battle plans against il health being a totally fluid and constantly changing picture.
It's also good the the transplant register is referred to as just that, a register, rather than a queue or a list. Because it most certainly is not the latter. But a constantly changing picture of logistics, back up, availability and severity that can't possibly conform to a queuing system, as its often referred to. A common misconception it seems to us now.
Best of luck Kieth, but rest assured that it seems to us, that luck has an ever decreasing baring on these things. They do seem to have it as sussed as availability will allow.
Regards
Chris
thanks all again for you kind responses.
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Topic: My Sister Amy (Read 33684 times)