My Sister Amy

[feeutfo]

Most of the family where there today. The relief is massive. They are exhausted, but delighted.

[The Red Baron]

great to hear shes doing so well, all the very best to her from burton on trent. 

[05omegav6]

  Must be such a relief. Sounds like she'll be running around and eating blue steak in no time at all

[Seth]

Please accept/pass-on our sincerest "Valleys best wishes" from the Seths to her Chris - and also the same to everyone involved in this great episode.

'Tis fantastic news indeed!

[aaronjb]

Today she has been mostly...

...on an exercise bike. 7 days after surgery  !

Sounds like most of us could stand to learn a thing or two from her in terms of grabbing life by the scruff of it's neck

Keeping my fingers crossed going forwards for a continued meteoric recovery 

[pscocoa]

Great stuff Chris

[TheBoy]

Phew! I read the bit about no steak, and thought that was a bitter pill to swallow.  But then saw that cremated steak was probably OK.  For the sake of allowing me to live, I could tolerate brunt steak. With chips and onion rings, obviously.


Now, tongue-in-cheek comments aside, forgive my ignorance on such matters, but does the body learn to not reject new organs over time? Or is it anti-rejction (and thus anti-immune system) drugs forever? If so, does that mean Amy has to avoid any future illnesses in the future?

Also, is a new set of airbags a complete cure for CF?


If the gayPhone Hotspot doesn't work too well (long term, the phone heats up, and then shuts down), I have a 3G dongle here she can borrow for weeks/months, though dongles obviously need a separate SIM.

[feeutfo]

I asked some of those Questions, there's a proverbial Elephant in the room so far, nobody seems to have had time to ask. Allowing the process to evolve at Amy's pase might be governing that. We had a wonderful visit yesterday getting heads round things as a family group. The amazement being primary, but for Amy up until mid week, I wonder mentally has there been much change to her position, a hospital bed is a hospital bed. The pain and duscomfort is still there from the op, which replaced the pain and discomfort of the old lungs. As Albs said at the start, the pain and suffering should soon end. Once she's more comfy the brain can start to process things I guess.

Things like, the future. Rather than just the next 24 hours. I suppose. A job perhaps? Money? Go places. Do things. The band. Touring.

They have a Physchologist come round. The emossional angles to it all for her and the family are ... well, massive. But as Dad said, remaim calm and carry on.

Some old symptoms remain, the pancreas gave up when she was 15, so a substitute is taken at meal times do aid digestion. The dietician is monitoring that, to get a new base line to work from.
She is diabetic as well now, so sugar levels and insulin will remain.

But, she can breath. The most basic thing, has returned.

[ozzycat]

  hi chris
tgisz is great news that amy is progresing so good
ive been a diabetic for 27yrs its beter to be a diabetic than not been able to breath
and its not that bad realy its amazing that amy is recovering so well brilliant 

[VXL V6]

Sorry, only just had chance to read this thread properly.

That's excellent news, please wish Amy all the best from Jane and I.

PM Sent. EDIT: Will be when you empty your inbox! 

[feeutfo]

Done, sorry. Creaps up doesn't it. 

[cleggy]

You sure she didn't do the marathon this morning and then slip back to the hospital 

Having said that I thought about her this morning when they interviewed a chap running 5 years after his lung transplant

Keep up the great recovery

[paul.lovejoy]

great to read the update Chris and share the good news thoughts with you all 

[D]

Phew! I read the bit about no steak, and thought that was a bitter pill to swallow.  But then saw that cremated steak was probably OK.  For the sake of allowing me to live, I could tolerate brunt steak. With chips and onion rings, obviously.


Now, tongue-in-cheek comments aside, forgive my ignorance on such matters, but does the body learn to not reject new organs over time? Or is it anti-rejction (and thus anti-immune system) drugs forever? If so, does that mean Amy has to avoid any future illnesses in the future?

Also, is a new set of airbags a complete cure for CF?

Poorly cooked meat ie: rare etc carries a risk of salmonella and a few other types of food poisoning. which when recovering from a transplant is not ideal.

The anti rejection drugs will be long term. If anything the body tends to identify the transplanted organ better over a period of time.

New lungs dont cure CF. It does cure the most significantly affected organ, the lungs. The improvement in quality of life post transplant is significant. Plus you dont have to do physio, nebulisers, pulmozyme, antibiotics etc for the lungs. which means you can do other more fun things during that time.

[feeutfo]

Phew! I read the bit about no steak, and thought that was a bitter pill to swallow.  But then saw that cremated steak was probably OK.  For the sake of allowing me to live, I could tolerate brunt steak. With chips and onion rings, obviously.


Now, tongue-in-cheek comments aside, forgive my ignorance on such matters, but does the body learn to not reject new organs over time? Or is it anti-rejction (and thus anti-immune system) drugs forever? If so, does that mean Amy has to avoid any future illnesses in the future?

Also, is a new set of airbags a complete cure for CF?

Poorly cooked meat ie: rare etc carries a risk of salmonella and a few other types of food poisoning. which when recovering from a transplant is not ideal.

The anti rejection drugs will be long term. If anything the body tends to identify the transplanted organ better over a period of time.

New lungs dont cure CF. It does cure the most significantly affected organ, the lungs. The improvement in quality of life post transplant is significant. Plus you dont have to do physio, nebulisers, pulmozyme, antibiotics etc for the lungs. which means you can do other more fun things during that time.