My Sister Amy

[feeutfo]

Visited today.... there where some tears last night apparently, after an off the cuff discussion with the nurse, it became clear she would NOT need to do 6-8 hours of Physio a day.

Tears of joy I might add.

Thanks to Mr and Mrs VXLV6 by the way. And all of you for your thoughts. 



Have to say I've shed more tears since the transplant, than when she was unwell. ...I'll try not to think about it too deeply.

[doz]

What a Brave Soul. Hat's off to you Amy. I'm sure for all your family it must be a very topsy turvy roller coaster  ride. Here's wishing you all the best. 

[aaronjb]

Things like, the future. Rather than just the next 24 hours. I suppose. A job perhaps? Money? Go places. Do things. The band. Touring.

So .. OOF outing to see her the first gig she plays once she's out?

Or is that just creepy ..

Glad she's still doing great, though

[feeutfo]

What a Brave Soul. Hat's off to you Amy. I'm sure for all your family it must be a very topsy turvy roller coaster  ride. Here's wishing you all the best. 

It is, but could have been so much more so. There was a tv programme, Love on the transplant list, about a young couple and thier family's almost hellish path to a new set of lungs for their 30 year old daughter with cf. Just happened to be a poll dancer btw.
Her lungs had degraded terribly, no capacity what so ever, sedated on life support. Family watching the ventilator figures drop through the floor, and no news of any organs available. Death looked certain.
Then news comes through, lungs available, all prepped for the op as they only have an hour before they degrade. Family delighted. A ray oh hope...


....nope, can't do the op. lungs are too big. They'd never fit in a million years. Family go back to dispare ( and I presume another family get the lungs with a more suitable patient ) by which time daughter is almost passing away in front of them, nothing to do except wait and hope.

Then finally, another pair of lungs available.... They fit, are suitable, op goes ahead, she lives, and is out of hospital in 5 weeks doing cartwheels in the park with her boyfriend and the dog.


Having seen that we where prepared for similar, possibly. Imagine the conversation then, a week ago Saturday morning, when Dad rang to say, after a long description of events that we already knew, that Amy was in theatre undergoing a transplant as we spoke.  I've not often been shocked in life, but that was definately one of those times. Disbelief. Relief. Worry. Jubilation. Concern.... Nope, stay calm and carry on.

Roller coaster ride? Yes, but could have been a lot worse.

[Lazydocker]

Do you mind Gayboy... You just brought a tear to my eye and a lump to my throat

Although I've not (yet) had the pleasure of meeting the lovely Amy, which I'm sure will happen in the (now much brighter) future, I do feel close(ish) to her battle through the conversations I have had with both yourself and H. I know how hard it has been for you all and am really pleased that things are improving so well. Perhaps you'll bring her along to one of our future curry opportunities so she can meet some of the reprobates who are wishing her well and rooting for her in the fight for fitness

[pauls]

Chris, I have just read this.. jesus what do you say.. So all I can say is best wishes and heres hopeing for a quick recovery

[feeutfo]

Do you mind Gayboy... You just brought a tear to my eye and a lump to my throat

Although I've not (yet) had the pleasure of meeting the lovely Amy, which I'm sure will happen in the (now much brighter) future, I do feel close(ish) to her battle through the conversations I have had with both yourself and H. I know how hard it has been for you all and am really pleased that things are improving so well. Perhaps you'll bring her along to one of our future curry opportunities so she can meet some of the reprobates who are wishing her well and rooting for her in the fight for fitness

Man up wet pants!

[Lazydocker]

Do you mind Gayboy... You just brought a tear to my eye and a lump to my throat

Although I've not (yet) had the pleasure of meeting the lovely Amy, which I'm sure will happen in the (now much brighter) future, I do feel close(ish) to her battle through the conversations I have had with both yourself and H. I know how hard it has been for you all and am really pleased that things are improving so well. Perhaps you'll bring her along to one of our future curry opportunities so she can meet some of the reprobates who are wishing her well and rooting for her in the fight for fitness

Man up wet pants!

[feeutfo]

Trackiotomy plumbing removed today. More talks with phsychologist. Evolving the pre op mind set to post op optimism is a massive step.

Diabetes is neither 1,2 or 3. But something specific to sf patients. Spleen packed up long ago so I guess it's related to that...?



And I'm sure there's some spelling issues in that lot.

[ozzycat]

Trackiotomy plumbing removed today. More talks with phsychologist. Evolving the pre op mind set to post op optimism is a massive step.

Diabetes is neither 1,2 or 3. But something specific to sf patients. Spleen packed up long ago so I guess it's related to that...?



And I'm sure there's some spelling issues in that lot.

im sure well forgive you  great news

[D]

Trackiotomy plumbing removed today. More talks with phsychologist. Evolving the pre op mind set to post op optimism is a massive step.

Diabetes is neither 1,2 or 3. But something specific to sf patients. Spleen packed up long ago so I guess it's related to that...?



And I'm sure there's some spelling issues in that lot.

Pancreas. I am sure her spleen is ok.  You are quite right, very specific to CF.

[feeutfo]

Trackiotomy plumbing removed today. More talks with phsychologist. Evolving the pre op mind set to post op optimism is a massive step.

Diabetes is neither 1,2 or 3. But something specific to sf patients. Spleen packed up long ago so I guess it's related to that...?



And I'm sure there's some spelling issues in that lot.

Pancreas. I am sure her spleen is ok.  You are quite right, very specific to CF.

Spleen/Pancreas, almost similar spelling.

I've no idea what either one does tbh... ?

Apologies D, I never asked before, but there's clearly some experience behind your replies?

[feeutfo]

I never asked Mark about his experiences either actually.   

Maybe over tin and a camp fire blast furness...? 

[feeutfo]

Looking at a possible release date. Possibly a week Friday... Ish.

[ozzycat]

  bloody hell chris thats great news shell be chasing you round the garden next