I'm not a fan of medication, but have to take it to function in any way near normally
I have cut mine down to morning (to give some relief to get up and get ready for the day) and night (to try and get a couple of hours sleep!)
If I manage to sleep 2-3 hours without waking up in pain I've had a good night
But at least I'm far enough down the line that I should be getting treatment in the next 6 months which will be the last thing that can be done... If it doesn't work (and it's possible it will make things worse
) then I'm stuck with it
I find that a gentle walk, although painful, means that I am getting some exercise and stops me going stir crazy
Most frustrating thing is not being able to do the work I always used to do but, thankfully, I have made some good friends through this forum who have stepped in and helped out